https://hemophiliamb.ca Hemophilia Society: Manitoba Chapter Thu, 27 Mar 2025 19:13:18 +0000 en-US hourly 1 https://wordpress.org/?v=6.7.2 March WGBD Newsletter https://hemophiliamb.ca/february-chapter-update-3/ Thu, 27 Mar 2025 19:10:26 +0000 https://hemophiliamb.ca/?p=16173

Get all the latest news for women and girls managing bleeding disorders! 

WGBD Committee Update, Family Camp 2025, World Hemophilia Day, AGM, Board Elections, CHS Rendez-Vous, CHS-MC RV Presentation, Iron Deficient Anemia,  Are you paying for DDAVP?, LTP Girls Affected by Hemophilia, WFH Webinar 
 
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Annual General Meeting https://hemophiliamb.ca/annual-general-meeting-2/ Thu, 27 Mar 2025 17:56:16 +0000 https://hemophiliamb.ca/?p=16148
CHS-MC Annual General Meeting 2025

The Chapter invites you to join us on Zoom this April 24th for the Annual General Meeting as we report our activities to the membership and public. 

Registered members will receive the 2024 Financial Statement. Members over 18 will vote on the 2024 Budget, elect board directors, and all are welcome to ask questions or voice concerns.

We will celebrate the accomplishments of the Chapter as the board President, the office staff and various committees will give reports. 

The AGM is an excellent opportunity to connect with Chapter members.

Registrants will receive the zoom link for the meeting and the AGM package in advance of the meeting.

Board Elections

The Chapter’s Board of Directors are elected at the Chapter’s Annual General Meeting which is held each year in April. The position of Past President is the exception as it can only be held by a past-president of the Board. The Board consists 5 Executive positions and 7 Directors.

For the Executive Officer positions, preference will be given to experienced Board Members, (current or previous). These positions, with the exception of the Past President, are available each year as they are 1 year terms.

Vacant or expiring Directorships are available to all members in good standing, Directorships rotate two year terms with half being available for election each year while the other half continue to serve the second year of their term.

Call for nominations; to elect members to the Board of Directors. there are two important documents pertaining to the election. These are: 1) a Nomination form, and 2) a Proxy vote form. These forms are made available to the membership in advance of the election.

Nomination deadline is April 10th

To learn more about our current Board please view our Board Profiles.

We look forward to seeing you! 

Any positions that are not filled at the AGM or become vacant during the current term, will be filled by appointment by the new Board and expire at the next AGM. They must be re-elected at that time.

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Family Camp Registration April 2nd https://hemophiliamb.ca/family-camp-registration-april-2nd/ Mon, 24 Mar 2025 15:33:47 +0000 https://hemophiliamb.ca/?p=16141

CHS-MC Family Camp Program

Registration opens 9 am on April 2nd

Limited space available – spots allocated by first come – first served.

Registration link will be published on the website home page camp slider and in the Family Camp section of Programs. 

 

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February Chapter Update https://hemophiliamb.ca/february-chapter-update-2/ Mon, 17 Mar 2025 18:14:05 +0000 https://hemophiliamb.ca/?p=16006

Get all the latest Chapter News! 

Hemlibra Announcement, CHS Strategic Plan Survey, Navigating the ER, RENDEZ-VOUS 2025, Golf Tournament Committee, Winnipeg Wellness Expo, Thank You!  
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Dinner & Navigating the ER https://hemophiliamb.ca/dinner-navigating-the-er/ Mon, 06 Jan 2025 15:51:49 +0000 https://hemophiliamb.ca/?p=15590

Join Us for a Community Evening!

Join Us Wednesday, January 22nd at CanadInns Polo Park, 1405 St Matthews Ave.

Dinner: 5:30 pm to 6:15 pm
There is no fee to attend


Are you a new member family? Are you new to Canada or Manitoba? Has it been a while since you had to visit an Emergency Department? Come and meet other Chapter members and visit with old friends!

CHS-MC is inviting all members to join us to learn how to “Navigate the ER”. We are so excited to have Crystalynne San Juan and Khristine Cheng, Manitoba Bleeding Disorders Program nurses, to guide us through the current realities of presenting to the pediatric and adult emergency departments. The goal is to give tips on how to best navigate the ER and how to set up you and your family up for success! 

Have you been curious about Family Camp? Is there something you want to know if we can help with? We are looking forward to sharing what the Chapter has to offer and take any questions you may have. We’ll show you how to send in a Member Service claim and describe the programs that your and your family can look forward to in 2025! 

Please register for this event so we can accommodate food allergies and restrictions. The deadline is Monday January 13th. 
Registration Form

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December Chapter Update https://hemophiliamb.ca/december-chapter-update-2/ Mon, 16 Dec 2024 16:38:32 +0000 https://hemophiliamb.ca/?p=15574

Get all the latest Chapter News! 

Holiday Information, Member Event January, 2024 Volunteer Awards, Anniversary Committee, Family Camp 2025, Thank You, Upcoming Events, CHS Webinar – Gene Therapy 2

January 2024


February 2024


March 2024


April 2024


May 2024


June 2024


July 2024


August 2024 News for Women & Girls


November 2024


December 2024

Chapter Update Issues 2023


January 2023


February 2023


Golf Tournament 2023


Gala Website


March 2023


April 2023


June 2023


WGBD October 2023


December 2023


WGBD March 2023


May 2023


August 2023


November 2023

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2024 CHS-MC Accomplishments https://hemophiliamb.ca/2024-chs-mc-accomplishments/ Wed, 27 Nov 2024 15:36:14 +0000 https://hemophiliamb.ca/?p=15490

Serving the Bleeding Disorders Community

The Canadian Hemophilia Society, Manitoba Chapter (CHS-MC) was built by families who recognized the value in a member-based organization that would serve the needs of the bleeding disorders community. In 2025 we look forward to celebrating 60 years that Manitobans have worked together to make a difference!

We are very proud of the work that our members do to serve the community. We invite you to read the report of our 2024 activities. We work to meet our mission; to improve the quality of life for those affected by hemophilia and other inherited bleeding disorders through support, service, research, education, and advocacy.

Would you consider a gift today? Help us continue serving the bleeding disorders community.

The postal strike is creating a challenge for our donors who prefer to mail a year end donation. Here are some other options:

Online – CHS-MC would gladly accept an online donation made through CanadaHelps. Your tax receipt is issued electronically by CanadaHelps. You can access the online form at CHS-MC at CanadaHelps.

Phone – You are welcome to make a donation over the phone. Our office is open Monday through Friday from 9 am to 3 pm. We are happy to email you a tax receipt or, if you prefer, we can mail it to you after the strike is over.

Thank you for your dedication to the inherited bleeding disorders community in Manitoba!

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Homecare Supplies https://hemophiliamb.ca/homecare-supplies/ Tue, 26 Nov 2024 17:26:52 +0000 https://hemophiliamb.ca/?p=15479

Homecare Supplies & The Postal Strike

Manitoba Bleeding Disorders Program (MBDP)

If you get your infusion supplies from the MBDP via post, you will need to make arrangements to collect your supplies from the nurse’s office in the Community Services Building at 685 William Ave. 

  • The office is open Monday through Friday from 8 am to 4 pm.
  • Call Sandy, the clerk, at 204.787.2465, to arrange a time for pick up. The building is locked and you need a time to ensure that someone is there to meet you. 
  • The Chapter is unable to send a courier for supplies. Access to the building and the lack of a specific arrival time makes a courier impossible. 
  • If you have exhausted your options to pick up your supplies, call the Chapter office at 204.775.8625 or email info@hemophiliamb.ca and we will try to help you.

Hemlibra Homecare Supplies

Roche is sending out supplies via Federal Express so there should only be a momentary disruption in receiving infusion supplies. 

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2024 Grey Cup Pool Winners! https://hemophiliamb.ca/2024-grey-cup-pool-winners/ Wed, 20 Nov 2024 16:24:40 +0000 https://hemophiliamb.ca/?p=15461

Thank You for Your Support! 

Congratulations to our Grey Cup Pool winners and thank you to the ticket sellers. This was the Chapter’s first attempt to sell three pools. (2700 tickets!)
 

Pool A Winners

David Yanchishyn, Eleanor Verrier, Nell Allen, Jim Freedy, Cecile Lafreniere, Pat Hebert, Tony Aquiar, Walter Bulat, Brad Machado, Jose DuLude, Mark McTavish, Erma Chapman, Emmy Read, Steve Locke, Dean Cook, Colette Banks, Jan Heming, Amanda Kaminsky, R & T Landscaping, Marty Dyckson, Celine Nott, Sean Stevenson, Michael Anderson, Tom Swistun, Adolf Neufeld, Andy Waite

Pool B Winners

Jim Rak, Blake Pilch, Colin Parsons, Jim Norbury, Lori Wallace, Monica B, Ken Smith, Steve Wirth, Karen Bernardin, Victor Banman, Jim Adams, Lori Wallace, Denny Smith, Lorne Hilton, Norman Jones, Lorelei Bedu, Gil Brunette, Doug Zellar, G Froese, David Fehr, Henry Penner, Evelyn Prestayko, Christine Tataryn, Craig Nichol, Norman Jones

Pool C Winners

Jay Spitua, Randy Klassen, Jim Rak, Dave Kyle, Marlene Payment, Duane Payment , Cory Prestayko, Carol Toyne, Ray (Ron Paul), Jim Rak, Kathy Hibberd, Devon Vermette, Gail Zacharchuk, Michelle Vermette, Doug McGregor, Dave Kyle, Darian Boyce, Stu Brown, Christine Hannah, Chris ?, Chris Ewing, Dwaine Schwark, Christine Rushinka, Louise Sherby, Paul Manzano

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November Chapter Update https://hemophiliamb.ca/november-chapter-update-2/ Thu, 14 Nov 2024 17:14:50 +0000 https://hemophiliamb.ca/?p=15428

Get all the latest Chapter News! 

RENDEZ-VOUS 2024, Grey Cup Pool, Member Services, All About Hemlibra, Gene Therapy Webinar, World Hemophilia Day 2025, GivingTuesday
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