Resources
New Resource 2022!
Novo Nordisk Canada has partnered together with Dr. Anthony Chan and the team at the McMaster Children’s Hospital to co-develop an educational booklet for girls with bleeding disorders to help prepare them and their caregivers for menarche (the first menstrual period).
This booklet was developed with input from a multidisciplinary group of 27 health care providers. It includes perspectives from pediatric and adult hematology, obstetrics and gynecology, nursing, physiotherapy, social work, primary care and emergency medicine. Importantly, it was also shaped by the lived experiences and advice shared by 19 girls and women with bleeding disorders and their caregivers from across Canada. Together, their insights were brought together in Know Your Flow_A guide to periods when you have a bleeding disorder (EN)
Canada
Canadian Hemophilia Society Women and bleeding disorders | Hemophilia
Let’s talk period Let’s talk period (letstalkperiod.ca)
Hemophilia Ontario Women With Bleeding Disorders are a priority for us. (hemophilia.on.ca)
International (WFH)
World Federation of Hemophilia eLearning Platform
Inherited bleeding disorders affecting women | Hemophilia
WFH eLearning Platform – von Willebrand Disease
WFH eLearning Platform – Carriers and Women with Hemophilia – Setswana
Videos
Dr. Meghan Pike will be introducing the Adolescent Menstrual Bleeding Questionnaire (aMBQ), designed to measure the impact of heavy menstrual bleeding on adolescent quality-of-life, and the app, called WeThrive, that can identify adolescents who have heavy menstrual bleeding.
We have the infographics for WeThrive for both teens and clinicians.
You can follow @we_thrive_app on Instagram, Twitter and TicTok.
The app is available on Android, IIOS, and at the Google store.
SESSION 1 | RED HOT TOPICS [September 10, 2021]
“New quality of life score in adolescent menorrhagia”
Presented by DR. MEGHAN PIKE, IWK Health Centre, Halifax
SESSION 1 | RED HOT TOPICS [September 10, 2021]
“A new hemophilia carrier nomenclature to define hemophilia in women and girls” Presented by DR. ROBERT SIDONIO, Emory University, Georgia, U.S.A.
SESSION 1 | RED HOT TOPICS [September 10, 2021]
“Sexuality and bleeding disorders”
Presented by GREIG BLAMEY, PT, Health Sciences Centre, Winnipeg, MB
CHS Rendez-vous 2019 / SESSION 3: WOMEN AND BLEEDING DISORDERS
Rendez-vous 2019 – Canadian bleeding disorder Medical and Scientific Symposium SESSION 3: WOMEN AND BLEEDING DISORDERS “Access to care issues for women with bleeding disorders: project update and preliminary results” Presented by DR. MICHELLE SHOLZBERG, St. Michael’s Hospital
CHS Rendez-vous 2019 / SESSION 3: WOMEN AND BLEEDING DISORDERS
Rendez-vous 2019 – Canadian bleeding disorder Medical and Scientific Symposium SESSION 3: WOMEN AND BLEEDING DISORDERS “How common is common? Prevalence and predictors of bleeding disorders in young women” Presented by DR. AYESHA ZIA, Southwestern Children’s Medical Center, Dallas, Texas
CHS Rendez-vous 2019 / SESSION 3: WOMEN AND BLEEDING DISORDERS
Rendez-vous 2019 – Canadian bleeding disorder Medical and Scientific Symposium SESSION 3: WOMEN AND BLEEDING DISORDERS “The phenotype-genotype challenge: A case and expert panel discussion” – ** IN FRENCH AND ENGLISH/POWERPOINT IN ENGLISH ** Presented by ELISABETH FAUVEL-BENOÎT, RN, CHU Sainte-Justine Panelists: Elisabeth Fauvel-Benoît, RN, Dr. Georges-Étienne Rivard, Dr. Rochelle Winikoff